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The Association for Frontotemporal Degeneration

Susan Dickinson, MS | Pennsylvania, United States

The Association for Frontotemporal Degeneration

Susan Dickinson, MS | Pennsylvania, United States

AFTD Patient-Focused Drug Development meeting with the FDA

The FDA recognizes patients and caregivers as the true experts in chronic, lifethreatening medical conditions like FTD. People living with a condition are

uniquely positioned to inform the understanding of the therapeutic context for
drug development and evaluation. The FDA created Patient-Focused Drug
Development meetings in 2013 as a way to systematically elicit patient and
caregiver perspectives about what are the most significant symptoms that affect
patients’ lives, and how are they currently approaching treatment for their
disease.